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Myeloproliferative Disorders

MPD Patient Support Groups

Listed below are local and online patient support groups for polycythemia vera, essential thrombocythemia and primary myelofibrosis patients.  Contact the MPD patient support group coordinator nearest you or scroll to the bottom of this page for online groups. 

New patient support groups are forming in the following areas:

Maryland - If you are interested in joining the new Maryland MPD patient support group, contact Jodi at jodi.navid@jhuapl.edu

Manhattan, NY - For more information please contact Susan Protter at sapla@aol.com or 212-362-7920

Philadelphia, PA - For more information please contact Marie at mtomp@57083@comcast.net

Local groups:

Akron / Cleveland / N.E. Ohio

Contact: Jay Schmitt at ohiompd@sbcglobal.net

Location:  Akron General Health & Wellness Center

4125 Medina Rd., Akron, OH 44333

Arkansas

Contact: JP Morgan at jpmorgan@hotmail.com

Upcoming meetings: To be announced

Atlanta, GA

Contact: Mel Brantley  mlbrsq@aol.com

Upcoming meetings: To be announced

Australia
Contact: Ken Young kyoung@yarranet.net.au or go here to be added to the mailing list for MPD Australia.

Central Texas Area

Contact: Alan at saalanc@hotmail.com

Upcoming meeting: To be announced

Chicago, IL
Contact: Sarah Dreller   smdreller@hotmail.com

Upcoming meetings: To be announced

Cincinnati, SW Ohio, NE Kentucky, & SE Indiana 

Contact: Paul Kulback at paulkulback@ameritech.net or Rebecca Lubitz rebeccalub@aol.com / 513-793-3179

Upcoming meetings: To be announced

Denver, CO

Contact: Dianne   dianne@systemsaverinc.com

Upcoming meetings: To be announced

Germany

Contact: mailto:MPD-Netzwerk@yahoogroups.de
Upcoming meetings: May be found here

Japan and Asia

Contact: Kaori Taki (patchleojp@yahoo.co.jp)

Upcoming meetings: To be announced

Knoxville, TN
Contact: Linda Tunstall at tunstalllinda@aol.com / 865-986-4565 OR Susan Nakamoto homecall@bellsouth.net / 865-687-5502

Upcoming meetings:  Meetings held from 6-7:30PM on the 2nd Thursday of every month at the Wellness Community, 702 Lindsay Place, Knoxville, TN.

*Please note that family members are welcome.

London
Contact: info@mpd-support.co.uk

Upcoming meetings: May be found here

Los Angeles, CA

Contact: Becky or Mike Smith at 661-297-6218

Upcoming meetings: To be announced

Mid-Michigan area

Contact: Ann Brazeau abrazeau@mpdfoundation.org or

312-636-3869

Upcoming meetings: To be announced

Montclair, CA

Contact:  510-654-5368

Upcoming meetings: To be announced

*Please note that caregivers are welcome.  

Naples, FL

Contact: Bee Dee Greenfield at naplesmpd@yahoo.com

Upcoming meetings: To be announced

New Jersey, New York and Pennsylvania (meetings in New Brunswick)

Contact:    Matt Weismantel matt.weismantel@rutgers.edu  or

                    732-932-9342 x 2609

Upcoming meeting: To be announced

Northeastern U.S. (NH, MA, RI, CT)
Contact: Jay Humphrey wwhumphrey@aol.com or 401-640-1500
Upcoming meetings: To be announced

Puerto Rico

Contact:   Maribel & Michael Rey

                   P.O. Box 364885,

                   San Juan, PR 00936-4885 

mpd.patientsupport.pr@gmail.com OR 787-779-8656

Upcoming meetings: Tuesday, October 21; Faccio Plaza located at PR Road 167, across from Rexville Towncenter, in Bayamon Puerto Rico.  If you cannot find the restaurant contact Maribel at 787-486-6188 or Michael at 787-934-8747

Racine, WI (Group for SE Wisconsin and NE Illinois )

Contact:  Marge Blocks mblocks@wi.rr.com  or 262-637-4338

                  Karen Luba 262-552-7047

Upcoming meetings: To be announced

       

San Francisco-Bay Area
Contact: Susan Susanklepper@hotmail.com

Upcoming meetings: To be announced

Saskatoon, Saskatchewan - Canada

Contact: Gordon Walz g.walz@sasktel.net

Upcoming meetings: To be announced

Seattle, WA

Contact:  Seattle MPD Yahoo Group

Upcoming meetings:  Found here if you become a group member

Toronto

Contact: Kevin Brown kb@iconhomes.com or 416-420-2266

Upcoming meetings: To be announced

United Kingdom
Upcoming meetings and forum found here

Washington, DC
Contact: Sarah Singer  singers@dc-cap.leukemia-lymphoma.org or                        703-960-1100 x231

Upcoming meetings: To be announced

 

Online Patient Support Groups:

MPDinfo
Includes an online support group (MPD-Net), answers to frequently asked MPD questions, myeloproliferative disorder biographies and offers medical resources for polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia (Idiopathic Myelofibrosis), and on chronic myelogenous leukemia (CML).

MPD Support - L

Since 1994, our MPD-Support-L web site and free support email list offers interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis. Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers. Our archives are available for you to research information. You can subscribe to our daily digest list by either one of our two easy methods, our EZ web interface, or by email.

 

Interested in starting a local MPD Patient Support Group? Contact Ann Brazeau for help getting started: abrazeau@mpdfoundation.org.

 
 

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