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MPD Patient Support Groups
Listed below are local and online patient support groups for polycythemia vera, essential thrombocythemia and primary myelofibrosis patients. Contact the MPD patient support group coordinator nearest you or scroll to the bottom
of this page for online groups.
New patient support groups are forming in the following areas:
Maryland - If you are interested in joining the new Maryland MPD patient support group, contact Jodi at jodi.navid@jhuapl.edu
Manhattan, NY - For more information please contact Susan Protter at sapla@aol.com or 212-362-7920
Philadelphia, PA - For more information please contact Marie at mtomp@57083@comcast.net
Local groups:
Akron / Cleveland / N.E. Ohio
Contact: Jay Schmitt at ohiompd@sbcglobal.net
Location: Akron General Health & Wellness Center
4125 Medina Rd., Akron, OH 44333
Arkansas
Contact: JP Morgan at jpmorgan@hotmail.com
Upcoming meetings: To be announced
Atlanta, GA
Contact:
Mel Brantley mlbrsq@aol.com
Upcoming meetings: To be
announced
Australia
Contact: Ken Young kyoung@yarranet.net.au
or go here
to be added to the mailing list for MPD Australia.
Central Texas Area
Contact: Alan at saalanc@hotmail.com
Upcoming meeting: To be announced
Chicago, IL
Contact: Sarah Dreller smdreller@hotmail.com
Upcoming meetings: To be announced
Cincinnati, SW Ohio, NE Kentucky, & SE Indiana
Contact: Paul Kulback at paulkulback@ameritech.net or Rebecca Lubitz rebeccalub@aol.com / 513-793-3179
Upcoming meetings: To be announced
Denver, CO
Contact:
Dianne dianne@systemsaverinc.com
Upcoming meetings: To be
announced
Germany
Contact: mailto:MPD-Netzwerk@yahoogroups.de
Upcoming meetings: May be found
here
Japan and Asia
Contact:
Kaori Taki (patchleojp@yahoo.co.jp)
Upcoming meetings: To be
announced
Knoxville, TN
Contact: Linda Tunstall at tunstalllinda@aol.com / 865-986-4565 OR Susan Nakamoto homecall@bellsouth.net / 865-687-5502
Upcoming meetings:
Meetings held from 6-7:30PM on the 2nd Thursday of every month at the Wellness Community, 702 Lindsay Place, Knoxville, TN.
*Please
note that family members are welcome.
London
Contact: info@mpd-support.co.uk
Upcoming meetings: May
be found here
Los Angeles, CA
Contact:
Becky or Mike Smith at 661-297-6218
Upcoming meetings: To be
announced
Mid-Michigan area
Contact: Ann Brazeau abrazeau@mpdfoundation.org or
312-636-3869
Upcoming meetings: To be announced
Montclair, CA
Contact:
510-654-5368
Upcoming meetings:
To be announced
*Please note that caregivers are welcome.
Naples, FL
Contact: Bee Dee Greenfield at naplesmpd@yahoo.com
Upcoming meetings: To be announced
New Jersey, New
York and Pennsylvania (meetings in New Brunswick)
Contact:
Matt Weismantel matt.weismantel@rutgers.edu
or
732-932-9342 x 2609
Upcoming meeting: To be announced
Northeastern U.S. (NH, MA, RI, CT)
Contact: Jay Humphrey wwhumphrey@aol.com
or 401-640-1500
Upcoming meetings: To be announced
Puerto Rico
Contact: Maribel & Michael Rey
P.O. Box 364885,
San Juan, PR 00936-4885
mpd.patientsupport.pr@gmail.com OR 787-779-8656
Upcoming meetings: Tuesday, October 21; Faccio Plaza located at PR Road 167, across from Rexville Towncenter, in Bayamon Puerto Rico. If you cannot find the restaurant contact Maribel at 787-486-6188 or Michael at 787-934-8747
Racine, WI (Group
for SE Wisconsin and NE Illinois )
Contact:
Marge Blocks mblocks@wi.rr.com
or 262-637-4338
Karen Luba 262-552-7047
Upcoming meetings:
To be announced
San
Francisco-Bay Area
Contact: Susan Susanklepper@hotmail.com
Upcoming meetings: To be announced
Saskatoon, Saskatchewan
- Canada
Contact:
Gordon Walz g.walz@sasktel.net
Upcoming meetings: To be
announced
Seattle, WA
Contact:
Seattle
MPD Yahoo Group
Upcoming meetings:
Found here
if you become a group member
Toronto
Contact:
Kevin Brown kb@iconhomes.com
or 416-420-2266
Upcoming meetings: To be
announced
United
Kingdom
Upcoming meetings and forum found here
Washington,
DC
Contact: Sarah Singer
singers@dc-cap.leukemia-lymphoma.org
or
703-960-1100 x231
Upcoming meetings: To be
announced
Online
Patient Support Groups:
MPDinfo
Includes an online support group (MPD-Net), answers to frequently
asked MPD questions, myeloproliferative disorder biographies and
offers medical resources for polycythemia vera, essential thrombocythemia,
agnogenic myeloid metaplasia (Idiopathic Myelofibrosis), and on
chronic myelogenous leukemia (CML).
MPD
Support - L
Since
1994, our MPD-Support-L web site and free support email list offers
interesting information on chronic myelogenous leukemia, polycythemia
vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia,
and myelofibrosis. Anyone - patient, family member, or health professional,
is welcome to join our growing list of subscribers. Our archives
are available for you to research information. You can subscribe
to our daily digest list by either one of our two easy methods,
our EZ web interface, or by email.
Interested
in starting a local MPD Patient Support Group? Contact Ann Brazeau
for help getting started: abrazeau@mpdfoundation.org.
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