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MPD Patient Support Group Coordinators First Annual Symposium
The First annual MPD Foundation Patient Support Group Coordinators Symposium will be held in Chicago, September 26th and 27th, 2008. Coordinators from all across the country and from Japan, United Kingdom, Canada and Puerto Rico will meet in person for the first time to discuss how to improve outreach to MPD patients, the latest news on MPD research and current clinical trials, how to cope with living with a chronic illness and basic meeting planning strategies. This two-day event will include a recognition dinner as a way to thank these exceptional volunteers for their time, commitment and outreach to the many patients in their respective parts of the world.
Educational Fundraiser: An Evening at the Detroit Institute of Arts
On October 9, 2008, 150 guests of Josephine Pompeo, a recently diagnosed myelofibrosis patient, will gather at the Detroit Institute of Arts to learn more about MPDs and what they can do to help. A cocktail party, including entertainment by the famous Simone Vitale Band, will be followed by a sit-down dinner. Guests will hear Josephine's story, her hematologist's explanation of the diesease and from the MPD Foundation's Ann Brazeau. This event will be a first in the Detroit area. Josephine assisted with the formation of a Michigan patient support group several months ago and already membership has grown to nearly 30 patients.
